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SCD Boot Camp Curriculum and Agenda

The Sickle Cell Disease (SCD) Nursing Boot Camp was developed using an evidenced-based SCD curriculum developed by nursing experts from throughout the United States - the Sickle Cell International Expert Nursing Curriculum Committee (SCIENCC). The curriculum included patient engagement and was designed after a landscape analysis of SCD healthcare providers and patients to determine gaps in SCD nursing care. The SCD bootcamp curriculum covers SCD care throughout the lifespan. The objectives of the curriculum are as follows:

1) Understand nursing care of people with SCD throughout the lifespan.

2) Understand health disparities and inequities that impact nursing care of people with SCD.

Program Agenda

Schedule is Tentative
Day 1: April 17, 2023

9:00 am – 10:30 am:  Welcome/Introductions

10:30 am – 11:15 am: Project Overview, Dr. Sara Day

11:15 am – 12:30 pm: Patient Panel

12:30 pm – 1:00 pm: Lunch

1:00 pm – 2:00 pm : SCD Pathophysiology, Dr. Stephanie Ibemere

2:00 pm – 3:00 pm: SCD Newborn Screening and Genetic Counseling, Yvonne M. Carroll, RN, JD

3:00 pm – 3:30 pm: Evidence-Based Practice Project Overview, Dr. Sara Day

3:30 pm – 4:00: Daily Wrap-Up, Dr. Elisabeth Chismark

Day 2: April 18, 2023

9:00 am – 10:00 am: SCD Health Disparities, Dr. Dominique Bulgin

10:00 am – 11:00 am: SCD Pain

11:00 am – 12:00 pm: SCD Break-Out Exercise

12:00 pm – 12:30 pm: Lunch

12:30 pm – 1:30 pm:  SCD Lung Complications, Charlene Sylvestre

1:30 pm – 2:00 pm:  Incentive Spirometer and SCD, Dr. Selorm Ansah

2:00 pm – 2:30 pm: Transfusions and SCD

2:30 pm – 3:00 pm: Retinal Complications and SCD

3:00 pm – 3:30 pm: Leg Ulcers and SCD, Dr. Stephanie Ibemere

3:30 pm – 4:00 pm:  Daily Wrap-Up, Dr. Elisabeth Chismark

 

Day 3: April 19, 2023

9:00 am – 11:00 am: Evidence Based Practice (EBP) Project Group Work

11:00 am – 12:00 pm:  Lunch

12:00 pm – 1:00 pm: Skeletal Complications of SCD, Kathy Burns, Clinical Nurse Specialist

1:00 pm – 2:00 pm: SCD and Mental Health, Dr. Lori Vick

2:00 pm – 3:00 pm: SCD Transition, Sheila Anderson, RN

3:00 pm – 3:30 pm: EBP Project Check In, Dr. Sara Day

3:30 pm – 4:00 pm: Daily Wrap-Up, Dr. Elisabeth Chismark

Day 4: April 20, 2023

9:00 am – 10:00 am: Neurological Complications and SCD, Dr. Christina Wills

10:00 am – 11:00 pm: Patient Advocacy and SCD, Rae Blaylark, Pat Corley & Ashley Valentine

11:00 am – 11:30 am: Renal Complications and SCD

11:30 am – 12:30 pm: Lunch

12:30 pm – 1:30 pm: SCD Medications and New Drug Therapies, Dr. Artangela Henry

1:30 pm - 2:30 pm: Bone Marrow Transplant and Gene Therapy, Dr. Akshay Sharma

2:30 pm - 3:30 pm: Priapism and SCD

3:30 pm – 4:00 pm: Daily Wrap-Up, Dr. Elisabeth Chismark

Day 5: April 21, 2023

9:00 am – 11:00 am: Evidence Based Practice Group Presentations

11:00 am – 12:00 pm: Lunch

12:00 pm – 12:30 pm: SCD Nurse Researcher, Dr. Keesha Roach

12:30 pm – 1:30 pm: Train the Train Overview, Dr. Sara Day

1:30 pm – 2:30 pm:  Course Wrap Up/Evaluations, Dr. Elisabeth Chismark

Principal Investigators

Three of the program presenters are principal investigators on the grant funding the program.

Professor Sara Day, PhD, RN, FAAN, is a Professor and Assistant Dean for the Center for Community and Global Partnerships at the  UTHSC College of Nursing. She has also served as Director of Nursing Education and Director of International Nursing at St. Jude Children’s Research Hospital.Dr. Day's research has had a measurable and sustained impact globally. She is a member of the International Nurse Researcher Hall of Fame.

Yvonne M. Carroll, RN, JD is the Director of Patient Services in the Department of Hematology at St. Jude. She is a researcher, lawyer, nurse, and patient advocate. Her research focus is SCD, including development of patient-centered material for new FDA approved drugs and SCD gene therapy. She  has managed grant awards from the National Institutes of Health, the Department of Health and Human Services, and numerous foundations and pharmaceutical companies.

Artangela Henry DNP, AGACNP-BC, FNP-C, is an Assistant Professor at the UTHSC College of Nursing. Her focus is preventive care, management, and research of sickle cell disease in the adult population.  

Oct 20, 2022